Ovarian Cancer National Resource List
*The list has been prepared by a collaborative effort between the GYNECOLOGIC CANCER FOUNDATION and the Ovarian Cancer Advocacy Organizations. 1599 Clifton Road, N.E.
Atlanta, GA 30329-4251
• www.cancer.org The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives and diminishing suffering from cancer, through research, education, advocacy, and service. ACS materials include books, brochures and other materials providing specific information on ovarian and other gynecologic cancers. Many materials are available in Spanish and the ACS can accommodate other language needs through its National Call Center. Our Call Center is available twenty-four hours a day, 7 days a week by calling 1-800-ACS-2345.
275 Seventh Avenue 22nd floor
New York, NY 10001
• info@cancercare.org
• www.cancercare.org Cancer Care, Inc. is a national nonprofit agency dedicated to providing emotional support, information, referral, and practical assistance to people with cancer and their loved ones, at no charge. Cancer Care has helped over 2 million people nationwide through its toll-free Counseling Line, its teleconference programs, its office-based services, and via the Internet. In 1944, Cancer Care was founded on the principle that living doesn't end when cancer begins.
4770 Buford Highway, MS-K52
Atlanta, GA 30341
• www.cdc.gov/cancer The Centers for Disease and Prevention (CDC) provides credible information to enhance health decisions, and promotes health through strong partnerships. The Division of Cancer Prevention and Control (DCPC) serves as a leader for nationwide cancer prevention and control and as a partner with state health agencies and other key groups. DCPC provides consultation, assistance, and training to state and local public health agencies and other health care provider organizations to improve education, training, and skills in the prevention, detection, and control of selected cancers, including breast, cervical, colorectal, prostate, ovarian, and skin cancers.
CONVERSATIONS!
The International Newsletter for Those Fighting Ovarian Cancer
806/355-2565 P.O. Box 7948
Amarillo, TX 79114-7948
• CHMelancon@aol.com
• www.ovarian-news.org Monthly newsletter written by an ovarian cancer survivor, reports on treatment options, clinical trials, coping skills, and early detection strategies. Offers humor and upbeat tone. Networking service to match women in similar circumstances. The newsletter is part of nonprofit Conversations: The International Ovarian Cancer Connection.
Roswell Park Cancer Institute
Elm & Carlton Streets
Buffalo, NY 14263
• www.ovariancancer.com Registry to track families with a history of ovarian cancer. Help line, education, information and peer support for women with high risk (family history) of ovarian cancer. The Registry research goals are to identify new genes associated with familial ovarian cancer.
322 Eighth Avenue, Suite 1402
New York, NY 10001
• www.gildasclub.org
The mission of Gilda's Club is to provide a place where people living
with any type of cancer, their families and friends can join others to
build social and emotional support as a supplement to medical care. There
are Gilda's Clubs opened across the U.S., also in Canada and London, England.
401 North Michigan Avenue
Chicago, IL 60606
• info@thegcf.org
• www.wcn.org/gcf/
The GCF is a not-for-profit organization established by the Society of Gynecologic Oncologists to support ovarian cancer research, training of cancer specialists in laboratory research, and a variety of programs for patient education and public awareness of gynecologic cancers. Calls to 1/800 444-4441 will enable an individual to obtain a list of nearby specialists in gynecologic oncology, a nation-wide directory of all SGO members, and informational literature. The GCF also sponsors an interactive website called the Women's Cancer Network (www.wcn.org). It offers understandable medical information about gynecologic cancers, treatment options, and experimental therapeutic programs. By answering specific questions a woman will be told her risk for developing gynecologic and breast cancers and how to change those risks.
• http://cancer.gov
The National Cancer Institute’s Cancer Information Service (CIS)
is a national information and education network. It is a practical first
stop for cancer patients. Trained information specialists provide information
by telephone and on-line through the CIS’s Live-Help Instant Messaging
service on topics related to specific cancers, cancer treatments, and
coping strategies. Printed materials include “What You Need to Know
about Ovarian Cancer,” lists of cancer centers and clinical trial
information.
1010 Wayne Avenue, Suite 770
Silver Spring, MD 20910
• info@cansearch.org
• www.cansearch.org
Founded in 1986 by and for people with cancer and those who care
for them, the National Coalition for Cancer Survivorship (NCCS) is the
only patient-led organization advocating on behalf of this country’s
8.9 million survivors of all types of cancer and those who care for
them. Our mission is to assure quality cancer care for all Americans.
NCCS educates, empowers and unites survivors and their
communities through its publications and programs, while
representing their voice in Washington on policy issues that affect
their ability to access quality cancer care.
27 Park Road
Toronto, ON M4W 2N2
• Canada wide: 877/413-7970, 416/962-2700 • 416/971-9800
• noca@cancercare.on.ca
• www.ovariancanada.org
The National Ovarian Cancer Association is dedicated to overcoming
ovarian cancer, providing leadership by supporting women living with
the disease, building awareness among the general public and health
care professionals, and funding research into prevention, early
detection, improved treatments and ultimately, a cure for this disease.
Education programs include a website, “Listen to the Whispers”
public education kit with video, quarterly newsletter and national
forum on ovarian cancer held in May ’99. NOCA has funded a
research chair in ovarian cancer at the University of Ottawa, a national
tissue bank network, and gynecological cancer research awards for
clinician/scientist training.
500 SE Spanish River Boulevard, Suite 14,
Boca Raton, FL 33431
561/393-0005, 561/393-7275 (fax)
• NOCC@ovarian.org
• www.ovarian.org
Largest Ovarian Cancer organization whose mission is to raise awareness
about ovarian cancer to promote early detection and education about the
disease. Sponsors professional education seminars for health care providers
and educational forums for the community. The Coalition is committed to
improving the overall survival rate and quality of life for women and
families living with the disease. There are 45 divisions in the country
of NOCC. Offers a toll-free helpline and comprehensive website.
200 Independence Ave., SW, Room 730B
Washington, DC 20201
The OWH (within the US Department of Health and Human Services) provides
national leadership in advancing women’s health through public policy,
research, service delivery, and education. The OWH develops, stimulates,
and coordinates women’s health research, health care services, and
public and health professional education and training across the agencies
of the Department of Health and Human Services. Programs include the Centers
of Excellence in Women’s Health. These centers provide integrated
and comprehensive clinical services, including regular screening for breast
and gynecological cancers, as well as research on women’s health
issues. The OWH also developed the National Women’s Health Information
Center (NWHIC). This gateway to over 800 topics on women’s health,
including reproductive health, is accessible through the website (www.4woman.gov)
and the toll-free phone service (1-800-994-WOMAN).
910 17th St. N.W., Suite 413
Washington DC 20006
• ocna@ovariancancer.org
• www.ovariancancer.org
This national umbrella organization works to increase public and
professional understanding of ovarian cancer, and to advocate for
more effective diagnostics, treatments, and cure. Members include
survivors and family members, local and national organizations and
health care providers. Materials include awareness information and
national policy issue papers. The Alliance sponsors an annual
advocacy conference, and various training programs.
One Pennsylvania Plaza, Suite 1610
New York, NY 10119
• info@ocrf.org
• www.ocrf.org
The Ovarian Cancer Research Fund is a not-for-profit organization
dedicated to the formulation of early diagnostic treatment programs
and research toward the ultimate conquest of ovarian cancer. As
OCRF strives to find a cure, it also seeks to support patients and their
loved ones in understanding this disease and its treatment as well as
to raise public awareness and provide educational information,
including resource materials and a free video about ovarian cancer.
An e-mail support group which allows survivors/others a chance
to exchange information and support daily. The list is not monitored
for medical accuracy. Easiest way to subscribe is to go to
http://www.acor.org and browse through
the cancer lists until you get
to Ovarian. Archives of all lists are at this site. Another way to
subscribe is to send an e-mail to listserv@listserv.acor.org.
In subject
area, type a dash or leave blank. In message area, type Subscribe
ovarian followed by your first and last name. For example: Subscribe
ovarian Mary Jones, e-mail to listserv@listserv.acor.org.
P.O. Box 2831
Springfield, VA. 22152-0831
• csinnex@yahoo.com
• www.monitor.net/ovarian
Newsletter with timely information about international research, diagnosis,
and treatments for ovarian cancer and the other gynecologic cancers. It
targets risk reduction, screening, early detection, psychosocial and policy
issues. Emphasizes importance of care by a gynecologic oncologist when
gynecologic cancer is first suspected. Published by a journalist with
a strong family history of ovarian cancer. Features a Medical Advisory
Board of prominent ovarian cancer researchers, publishes practical tips
based on true stories. and articles by medical writers.
753-B Thimble Shoals Blvd.
Newport News, VA 23606
• help@patientadvocate.org
• www.patientadvocate.org
Patient Advocate Foundation is a national non-profit organization
patient and their insurer, employer and/or creditors to resolve
insurance, job profit organization that serves as an active liaison
between the discrimination and /or debt crisis matters relative to
their diagnosis through case managers, doctors and attorneys.
Patient Advocate Foundation seeks to safeguard patients through
effective mediation, assuring access to care, maintenance of
employment and preservation of their financial stability.
1501 Broadway, Suite 1720
New York, NY 10036
• www.sharecancersupport.org
A not-for-profit organization providing information hotlines, for
breast and ovarian cancer, in English and Spanish; peer led support
groups; wellness, education and advocacy programs. Contributes to
awareness regarding prevention, early detection, and research.
Toll-free number: 866/891-2392
6024 Welch Ave.
Ft. Worth, TX 76133
• www.sgno.org
The SGNO is an international organization of nurses and health
professionals dedicated to the advancement of patient care,
education, and research in the field of gynecologic oncology
and women’s health care.
401 North Michigan Avenue
Chicago, IL 60606
• sgo@sba.com
• www.sgo.org
The SGO is a professional organization of physicians who are
specialists trained in the comprehensive management of women
with cancers of the female reproductive tract. Gynecologic
Oncologists are certified by the American Board of Obstetrics and
Gynecology in obstetrics and gynecology and receive certification of
special competence in gynecologic oncology, following an additional
three to four years of training. Affiliate members of the SGO are
specialists in radiation therapy, medical oncology or pathology who
have particular interests and skills in gynecologic cancer care. The
overall purpose of the SGO is to improve the care of women with
gynecologic cancers and to raise the standards of practice in the
treatment and prevention of gynecologic malignancies.
35 East Seventh Street, Suite 412
Cincinnati, OH 45202
• help@wellness-community.org
• www.wellness-community.org
Established in 1982, The Wellness Community is the country’s
largest network of free psychological and social support for people
with cancer and their loved ones. Provides professionally led support
groups and education, stress management and social networking in a
home-like setting with a focus on enhancing health and well-being.
www.orthobiotech.com
Thank you to Ortho Biotech Oncology for support of this list.
May 2002
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