Sexuality Issues

Women with endometrial cancer have to deal with many changes in their lives. Over time, who they are, how they feel about themselves, and their relationships may all change as a result of the cancer. Some of the changes related to their sexuality are outlined below. Some ideas are shared on how to deal with those changes, and some resources are listed at the end.

Many women feel awkward talking about sexual issues. Some might find it hard to be honest about how they feel. A woman's partner, doctor, or nurse may wait for her to bring up the subject of sex. That may be because they don’t want to make her feel uncomfortable. Women should feel free to ask questions and talk about their sexual issues or concerns. It might be helpful to talk to social workers, counselors, or other women in support groups.

When you think about the effects cancer may have had on your sexuality, you may want to ask yourself the following questions:

  • How has my illness changed the way I see myself and feel about myself?
  • How has my illness interfered with my role as partner or mother or...?
  • How has my illness affected my sexual functioning or response?

Changes

Short- and long-term changes take place with cancer treatment. Many may affect your sexuality. The changes may be temporary. Or some may last a long time. The effects of different treatments can change how you feel, look, and functions. Changes in body image such as hair loss, weight changes, menopause, fatigue, pain, and anxiety are some side effects you may have. After being treated for cancer, you may experience low sexual desire, vaginal dryness, vaginal shortening or narrowing, painful intercourse, trouble reaching orgasm, and infertility. All of these changes can affect your sexuality and your ability and interest in sexual activity. Sexuality refers to more than sexual intercourse. It includes other means of sexual expression, such as touching and kissing. Intimacy refers to the physical or emotional closeness you share with another individual. Self-esteem and body image are important factors that define, at least in part, how you feel about yourself.

Whether the changes are short-term or long lasting, you can find ways to feel good about yourself and to be intimate with your partner. It is important that you remember to be patient and give yourself time. Below are some ideas to help you cope with these changes:

  • Focus on physical recovery, including diet and physical activities.
  • Ask your doctor or nurse about maintaining or resuming sexual activity.
  • Include your partner in discussions.
  • Report vaginal discharge or bleeding, fever, or pain to your doctor or nurse.
  • Choose a time for intimacy when you and your partner are rested and free from distractions.
  • Create a romantic mood.
  • Try different positions until you find one that is more comfortable and less tiring for you.
  • Use pillows for comfort.
  • Use a water-soluble lubricant (Astroglide, K-Y jelly, Lubrin), if needed for intercourse.
  • Use dim lights, wigs, lingerie, and other things to cover wounds or scars if body image concerns keep you from been intimate.
  • If pain symptoms or nausea prevents you from being intimate, take medications 30-60 minutes before emotional closeness.
  • Remember that cancer is not contagious.
  • Use birth control during cancer treatment if needed.
  • Remember that being intimate will not cause the cancer to come back or grow.
  • Remember that your partner is also affected by your cancer. So talk about the feelings and fears you both have.
  • Explore different ways of showing love (hugging and holding, stroking and caressing, talking).
  • Discuss treatment options with your health care team if you have menopausal symptoms because of therapy.
  • Find humor where you can

You may feel overwhelmed with the information you receive from your doctor. It is important to take the time to gather as much information as possible. Below are some questions to ask your doctor.

Sexuality Questions

  • How will my cancer and its treatment affect my desire for sex and my sexual function?
  • How long will these changes last?
  • What can I do about them?
  • Will I cause harm to myself or to my partner if I have sex?
  • Are there any restrictions that I should be aware of?