Allied Support Group Current Members
Current Members
American Cancer Society
The American Cancer Society is dedicated to eliminating cancer as a major health problem by saving lives, diminishing suffering, and preventing cancer through research, education, advocacy, and service. Founded in 1913 and with national headquarters in Atlanta, the Society has 14 regional Divisions and local offices in 3,400 communities, involving millions of volunteers across the Untied States. The American Cancer Society is available to people facing cancer when they need help and where they need help. For cancer information and services any time, day or night, call 1-800-ACS-2345 or visit www.cancer.org.
Contact(s)
Debbie Saslow, Ph.D
901 E. Street, N.W., Suite 500
Washington, D.C., 20004
404.982.3620
404.417.5844 — Fax
Debbie.saslow@cancer.org
American College of Obstetricians and Gynecologists
The American College of Obstetricians and Gynecologists (ACOG) is dedicated to the advancement of women's health through education, practice, research, and advocacy. Founded in 1951, ACOG is a membership organization representing over 47,000 members who provide health care for women. ACOG provides patient education materials on a variety of topics, including gynecologic cancer. Information about these materials is available on the ACOG website www.acog.org or by calling 202.863.2518 or e-mailing a request to resources aacog.org. In addition, ACOG provides an online physician directory as a public service to women who wish to locate an obstetrician-gynecologist in their area. This service is available at www.acog.org.
Contact(s)
Mary Mitchell
PO Box 96920
Washington, DC 20090-6920
202.863.2525
202.863.1643 — Fax
mmitchel@acog.org
CancerCare
CancerCare is dedicated to helping people face the many challenges of a cancer diagnosis. As the largest national non-profit organization of its kind, CancerCare provides free professional support services including counseling, education, financial assistance, and practical help to people across the country. Since our inception in 1944, CancerCare has offered help and hope to more than two million people with cancer, their family members and friends, as well as healthcare professionals. Our services are available to people of all ages, with all types of cancer and at any stage of the disease. More information about CancerCare can be found online at www.cancercare.org or by calling (800) 813-HOPE.
Contact(s)
Laura Mosiello, LCSW-R
275 Seventh Avenue
New York, NY 10001
800.813.4673 x6133
212.712.8495 Fax
lmosiello@cancercare.org
Cancer Support Community
Cancer Support Community provides the highest quality emotional and social support through a network of nearly 50 local affiliates, more than 100 satellite locations and online. To find a community-based center in your area, visit www.cancersupportcommunity.org
Contact(s)
Sara Goldberger
48 Wall Street, 11th Floor
New York, NY 10005
917.305.1200, ext. 233
sgoldberger@gildasclub.org
CCARE Lynch Syndrome
CCARE Lynch Syndrome is leading the fight against Lynch syndrome, the most common genetic cause of endometrial and colon cancers, through education, advocacy and research. Targeting health care professionals and the general public, particularly women, the organization is devoted to increasing Lynch syndrome awareness, identifying hereditary cancers at the earliest possible stage and saving lives. For more information, visit www.fightlynch.org.
Contact(s)
Sharon Perlman
Executive Director
127 – C West Oak Street
Chicago, IL 60610
Phone: (307) 307-8798 Fax: (847) 267-0746
E-mail: sjperlman@fightlynch.org
Center for Disease Control and Prevention Ovarian Cancer Research Program
The Centers for Disease and Prevention (CDC) provides credible information to enhance health decisions, and promotes health through strong partnerships. The Division of Cancer Prevention and Control (DCPC) serves as a leader for nationwide cancer prevention and control and as a partner with state health agencies and other key groups. DCPC provides consultation, assistance, and training to state and local public health agencies and other health care provider organizations to improve education, training, and skills in the prevention, detection, and control of selected cancers. Programs and initiatives address breast, cervical, colorectal, skin, prostate, and ovarian cancers, as well as cancer surveillance and survivorship. CDC's ovarian cancer control initiative enhances the limited knowledge about ovarian cancer by working with academic and medical institutions and advocacy groups to identify factors related to the early detection and treatment of ovarian cancer. In addition, three cancer registry programs receive funds through CDC's National Program of Cancer Registries to evaluate care and outcomes for patients with ovarian cancer.
Contact(s)
Cynthia Gelb
4770 Buford Hwy., NE, MSK57
Atlanta, GA 30341
770.488.4880
770.488.4727 — Fax
cgelb@cdc.gov
Childhood Gynecologic Cancer Association
The Childhood Gynecologic Cancer Association is a nonprofit organization whose mission is to provide a forum on childhood gynecologic cancers for providers, patients and their families; to obtain current information for education and clinical trials; to develop a comprehensive referral resource center and registry; to advance research in childhood gynecologic cancers. For more information, visit www.cgynca.org.
Contact(s)
Hope K. Kaefner
P.O. Box 3130
Ann Arbor, MI 48106-3130
Phone: (734) 663-7251
E-mail: hopehaefner@hotmail.com
Conversations! The International Newsletter for Those Fighting Ovarian Cancer
Monthly newsletter written for ovarian cancer fighters, reports on treatment options, clinical trials, coping skills, and early detection strategies. Offers humor and upbeat tone. Networking service to match women in similar circumstances. The newsletter is part of nonprofit Conversations: The International Ovarian Cancer Connection.
Contact(s)
Don Melancon
PO Box 7948
Amarillo, TX 79114-7948
210.401.1604
806.467.9755 — Fax
djmelancon@dcamweb.net
Department of Defense
The Department of Defense has a vision to find and fund the best research to eradicate diseases and support the war fighter for the benefit of the American Public. Their mission is to provide hope by promoting innovation research, recognizing untapped opportunities, creating partnerships, and guarding the public trust.
Contact(s)
Patricia Modrow, MD
1077 Patchel Street
Ft. Detrick, MD 21702
301.619.7077
patricia.modrow@det.amedd.army.mil
EyesOnThePrize.org
The mission of EyesOnThePrize.org, a nonprofit corporation, is to provide information and emotional support from the survivors' perspective to women with gynecologic cancers, their families and friends, and healthcare providers.
Contact(s)
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Sue Donley 700 10th St. Oakmont, PA 15139 412.828.8679 sued@eyesontheprize.org |
Judy Knapp, Ph.D. 2540 Monroeville Blvd Monroeville, PA 15146 724.838.7477 heilandknapp@aol.com |
FORCE: Facing Our Risk of Cancer Empowered
FORCE is a national nonprofit organization providing support, information, awareness, and advocacy for individuals concerned about or affected by hereditary breast or ovarian cancer. Through our website, our printed materials and our toll-free help line we reach out to those who may be at high risk for these cancers due to family history of cancer or a BRCA mutation.
Contact(s)
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Sue Friedman 16057 Tampa Palms Blvd. W. PMB #373 Tampa, FL 33647 954.255.8732 866.288.RISK — Voice Mail 954.827.2200 — Fax suefriedman@facingourrisk.org |
Foundation for Women’s Cancer (Lead Partner)
The Foundation for Women’s Cancer, formerly the Gynecologic Cancer Foundation, is a not-for-profit organization established in 1991 by the Society of Gynecologic Oncologists to support research and training, and gynecologic cancer prevention, early detection and optimal treatment. The Foundation hosts multiple courses throughout the United States each year for survivors of cervical, ovarian and uterine cancer. Calls to 1/800 444-4441 enable an individual to obtain a list of nearby specialists in gynecologic oncology, a nation-wide directory of all SGO members, and informational literature. The Foundation’s Web site offers understandable medical information about women's cancers; treatment options and experimental therapeutic programs, a frequently asked questions, the Sisterhood of Survivorship section for the posting of messages of hope, and information about clinical trials.
Contact(s)
Marsha T. Wilson
Director of Communications and Advocacy Relations
Foundation for Women's Cancer
formerly the Gynecologic Cancer Foundation
301.332.0117
mwilson@foundationforwomenscancer.org
foundationforwomenscancer.org
Granulosa Cell Tumour Foundation New Zealand
GCTF NZ was created to provide information about granulosa cell tumour of the ovary to both patients & the medical community. Provide support services to survivors of GCT. Raise awareness within the medical and pharmaceutical world, and within government agencies, of the need for more research on GCT-specific issues. To search for, and/or solicit new research specifically focused on GCT and the developement of new therapeutic treatments.
Contact(s)
Powel Crosley
PO Box 91088
Victoria Street West
Auckland 1142
New Zealand
+64 9 575 9161 — Phone
admin@gctf.org.nz
Gynecologic Oncology Group
The Gynecologic Oncology Group (GOG) is one of the National Cancer Institute's (NCI) funded cooperative cancer research groups. GOG is the only group which focuses its research on women with pelvic malignancies, such as cancer of the ovary, uterus, and cervix. The GOG is a multi-modality group with over twenty-one hundred participants, which include gynecologic oncologists, medical oncologists, pathologists, radiation oncologists, nurses, statisticians, basic scientists, quality of life experts, data managers, and administrative personnel. The GOG is the foremost multidisciplinary cooperative clinical trial research group devoted to the study of gynecologic malignancies in the world. The GOG is recognized as the leader in the development of new procedures in each of the relevant diagnostic and therapeutic disciplines. The GOG has as its main objective to provide an appropriate instrument to test new ideas from prevention of female pelvic malignancies and management of patients with such malignancies. GOG continues to pave the way in gynecologic oncology trials, setting the standard for cancer research and treatment.
Contact(s)
Laura L. Reese
1600 JFK Blvd., Suite 1020
Philadelphia, PA 19103-2880
215-854-0770
lreese@gog.org
In My Sister's Care
In My Sister’s Care is a national consumer health organization dedicated to eliminating health disparities and to improving gynecologic cancer awareness and early detection, access to care, quality of care, and quality of life for women of color and other medically under served populations. The founding focus is on ovarian cancer and on African-American women and other women from the African Diaspora.
Contact(s)
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Mary Jackson Scroggins 112 36th Street, N.E. Washington, DC 20019-2601 202.607.1883 mary@inmysisterscare.org Nekima@aol.com |
Nyrvah Richard 244 Fifth Avenue, Suite J284 New York, New York 10003 212.802.7686 nyrvah@inmysisterscare.org |
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E. Renae Plummer 244 Fifth Avenue, Suite J284 New York, New York 10003 212.802.7686 renae@inmysisterscare.org |
International Gynecologic Cancer Society
The International Gynecologic Cancer Society (IGCS) is a not for profit, non political, and independent organization contributing to the prevention, treatment and study of gynecologic cancer and the quality of life of women suffering from gynecologic cancer throughout the world. The IGCS promotes and facilitates the enrichment and dissemination of knowledge and skills of its members in the areas of prevention, treatment and study of gynecologic cancer. For these areas the IGCS is recognized worldwide as the foremost scientific and medical organization. The IGCS has no direct or financial involvement in patient care and research.
Contact(s)
Erica Bard Riley, MA
PO Box 6387
Louisville, KY 40206
502.891.4460
adminoffice@igcs.org
The Lynne Cohen Foundation
Founded in 1998 in memory of Lynne Cohen by her three daughters (then in their twenties), the Lynne Cohen Foundation for Ovarian Cancer Research is a nonprofit organization that raises funds to support medical research aimed at detecting ovarian cancer early (when a woman has the best chance for a cure) and cutting-edge treatments for primary diagnoses and recurrences. For women who have an increased risk of developing breast and/or ovarian cancer, the Foundation has established five preventive care clinics for women's cancers at leading cancer centers across the country. These programs provide a unique individualized, comprehensive, multi-disciplinary approach to cancer screening and prevention. Each woman who participates in the program has access to breast and gynecologic exams and screenings, genetic counseling, lifestyle counseling, educational tools, and the latest early detection and prevention trials all in one place, and in one day. Established in 2005, the Lynne Cohen Consortium allows researchers and scientists from each program to pool data from the diverse high-risk communities they serve with the goal of collaborative, highly-focused investigative work on novel concepts in the screening and early detection of breast and ovarian cancer.
The Lynne Cohen Preventive Care Programs:
- Lynne Cohen High Risk Clinic at Bellevue Hospital Center in New York (for underserved women);
- Lynne Cohen Breast Cancer Preventive Care Program at NYU Cancer Institute;
- Lynne Cohen Preventive Care Clinic for Women's Cancers at USC/Norris Comprehensive Cancer Center in Los Angeles;
- Lynne Cohen High Risk Screening and Prevention Project for Ovarian and Breast Cancer at MD Anderson Cancer Center in Houston;
- Lynne Cohen Preventive Care Program for Women's Cancers at University of Alabama, Birmingham
Contact(s)
Kimberly Gill
PO Box 7128
Santa Monica, CA 90406-7128
310.443.4294 ext. 2
310.442.4245
kimberly@lcfocr.org
www.lynnecohenfoundation.org
Marsha Rivkin Center for Ovarian Cancer Research
The mission of the Marsha Rivkin Center is to save lives and reduce suffering through improved treatment, detection and prevention of ovarian cancer. The Marsha Rivkin Center is working to accomplish this mission by funding innovative research through their Pilot Study Program, funding promising scientists with their Scientific Scholar Award, providing ovarian cancer screening and organizing educational symposium. More information about the Marsha Rivkin Center can be found online at www.marsharivkin.org.
Contact(s)
Executive Director, Clint Burwell
801 Broadway Suite 701
Seattle, WA 98122
206.215.6200
206.215.6201-Fax
clint.burwell@swedish.org
National Cancer Institute
The National Cancer Institute's Cancer Information Service (CIS) is a national information and education network. It is a practical first stop for cancer patients. Trained information specialists provide information by telephone and on-line through the CIS's Live-Help Instant Messaging service on topics related to specific cancers, cancer treatments, and coping strategies. Printed materials include "What You Need to Know about Ovarian Cancer," lists of cancer centers and clinical trial information.
Contact(s)
Edward Trimble, MD, MPH, tt6m@nih.gov
Elizabeth Neilson, neilsone@mail.nih.gov
Rose Mary Padberg, padbergr@mail.nih.gov
Executive Plaza North, Suite 7025
6130 Executive Blvd.
Bethesda, MD 20892-7436
301.496.2522
301.402.0557 — Fax
National Coalition for Cancer Survivorship
Founded in 1986 by and for people with cancer and those who care for them, the National Coalition for Cancer Survivorship (NCCS) is the only patient-led organization advocating exclusively on behalf of this country's 9 million survivors of all types of cancer and those who care for them. Our mission is to advocate for quality cancer care for all Americans. NCCS educates, empowers and unites survivors and their communities through its publications and programs, while representing their voice in Washington on policy issues that affect their ability to access quality cancer care.
Contact(s)
Pamela Milberg
1010 Wayne Ave., #779
Silver Spring, MD 20910
301.650.9127
Fax: 301.565.9670
pmilberg@canceradvocacy.org
National Ovarian Cancer Coalition
Founded in 1995, the Coalition is the largest grassroots ovarian cancer organization in America with over a thousand volunteers organized in almost every State. The Coalition's mission is to raise awareness about ovarian cancer to promote early detection and education about the disease. It is committed to improving the overall survival rate and quality of life for women and families living with the disease. The Coalition hosts an award-winning informational website with discussion forums, operates a toll-free helpline, publishes educational information, co-sponsors a nationally touring art exhibit on ovarian cancer, organizes professional education seminars for health care providers and offers educational forums for the community.
Contact(s)
David Barley
2501 Oak Lawn Ave, Suite 435
Dallas, TX 75219
dbarley@ovarian.org
Office on Women's Health within the Department of Health and Human Services
The OWH (within the US Department of Health and Human Services) provides national leadership in advancing women's health through public policy, research, service delivery, and education. The OWH develops, stimulates, and coordinates women's health research, health care services, and public and health professional education and training across the agencies of the Department of Health and Human Services. Programs include the Centers of Excellence in Women's Health. These centers provide integrated and comprehensive clinical services, including regular screening for breast and gynecological cancers, as well as research on women's health issues. The OWH also developed the National Women's Health Information Center (NWHIC). This gateway to over 800 topics on women's health, including reproductive health, is accessible through the website (www.4woman.gov) and the toll-free phone service (1-800-994-WOMAN).
Ovarian Cancer Canada
Ovarian Cancer Canada was founded in 1998 by a small group of women diagnosed with ovarian cancer. Building on their grassroots approach, Ovarian Cancer Canada (OCC) has grown into a nationally recognized and respected organization still focused on support, awareness and education, OCC continues to develop initiatives in these three areas, as a testament to the memory of the founders and as a tribute to the thousands of Canadians affected by ovarian cancer every year. OCC is membership-based organization, with membership free and open to all. Our mandate is clear: We support women with ovarian cancer and their families, women in general and the broader community through awareness campaigns and activities, the creation and dissemination of education materials appropriate in language, format and content for particular audiences, and fundraising for research in ovarian cancer.
Contact(s)
Elisabeth Ross
Ovarian Cancer Canada
145 Front Street East, Suite 101
Toronto On M5A 1E3
eross@ovariancanada.org
Ovarian Cancer National Alliance
This national umbrella organization works to increase public and professional understanding of ovarian cancer and to advocate for more effective diagnostics, treatments, and cure. The Alliance conducts education programs, sponsors an annual advocacy conference, and provides training for groups across the country to offer education and outreach initiatives at the state and local level. Alliance leaders work closely with federal policy makers and health officials. Members include survivors and family members, local and national organizations and health care providers. Materials include a quarterly newsletter, awareness information, and national policy issue papers.
Contact(s)
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Judith S. Abrams (President)
Barbara Bellman
Deborah Bohren
Robert Ferriday III
Karen Orloff Kaplan, MSW, MPH, ScD
Benita Hofstetter Koman
Linda Koteen (Secretary) |
Annette Leal Mattern
Terri McKnight (Treasurer)
Sue Ellen Moore
Diane Rader O'Connor
Dennis Oziel (Member-at-large)
Rebekah N. Plowman, Esq.
Christy Schmidt (President-Elect) |
The Ovarian Cancer Research Fund, Inc.
The Ovarian Cancer Research Fund is a not-for-profit organization dedicated to the formulation of early diagnostic treatment programs and research toward the ultimate conquest of ovarian cancer. As OCRF strives to find a cure, it also seeks to support patients and their loved ones in understanding this disease and its treatment as well as to raise public awareness and provide educational information, including resource materials and a free video about ovarian cancer.
Contact(s)
14 Penn Plaza, Suite 1710
New York, NY 10122
212.268.1002
212.947.5652 — Fax
Share: Self-help for Women with Breast or Ovarian Cancer
A not-for-profit organization providing information hotlines, for breast and ovarian cancer, in English and Spanish; peer led support groups; wellness, education, and advocacy programs. Contributes to awareness regarding prevention, early detection, and research. Toll-free number: 866.891.2392
Contact(s)
Alice Yaker
MPH1501 Broadway, Suite 704A
New York, NY 10036
212.937.5581
212.869.3431 - Fax
ayaker@sharecancersupport.org
Society of Gynecologic Nurse Oncologists
The SGNO is an international organization of nurses and health professionals dedicated to the advancement of patient care, education, and research in the field of gynecologic oncology and women's health care.
Contact(s)
Lynn Cloutier RN, MSN, ACNP-BC, AOCN
4722 Cornoustie
Pasadena, TX 77505
281.991.8022
lcloutier@sgno.org
Society of Gynecologic Oncology
The Society of Gynecologic Oncology (SGO) is a national medical specialty of physicians who are trained in the comprehensive management of women with malignancies of the reproductive tract. Its purpose is to improve the care of women with gynecologic cancer by encouraging research, disseminating knowledge which will raise the standards of practice in the prevention and treatment of gynecologic malignancies and cooperating with other organizations interested in women's health care, oncology and related fields. SGO's members make it the leading organization of gynecologic oncologists in the United States. As gynecologic oncologists, our members are women's cancer specialists who have received an additional 3-4 years of intensive medical training in the study and treatment of malignancies arising in the female reproductive tract — ovary, endometrium, cervix, vulva and vagina. The Society's members provide unified, comprehensive medical and surgical care to women with reproductive tract cancers from diagnosis to completions of treatment.
Contact(s)
Mary Eiken
230 W. Monroe, Suite 700
Chicago, IL 60606
312.235.4060
mary.eiken@sgo.org